Volunteers needed! 🤝 🏕️ Camp Promise is seeking volunteers to help at our Pennsylvania location from August 10-16. From helping campers experience exhilarating “firsts” to assisting with needs throughout the week, your time with Camp Promise will be the best week of the summer. Learn more and apply today at camppromise.org.
Jett Foundation
Non-profit Organizations
Plymouth, MA 971 followers
Empowering families. Fighting Duchenne.
About us
Since 2001, Jett Foundation has met the needs of the Duchenne muscular dystrophy community. Duchenne is the most common lethal genetic disorder of children worldwide. It is a progressive neuromuscular disorder that causes the loss of muscle function and independence. Most children are diagnosed around kindergarten, many will stop walking before high school, and few will celebrate their 25th birthday. There are approximately 20,000 patients in the United States living with Duchenne. While we were founded out of one family’s desperate need to save their son, we have transformed dramatically. Once a non-profit dedicated to raising money for biomedical research, today we are meeting our families and young people where they are with direct service and educational programs that improve and enrich the lives of individuals impacted by Duchenne. Through Ready. Set. Jett., a national educational series that brings together researchers, families, and clinicians, we empower patients and families with the knowledge needed to be their own best advocates, spread awareness about Duchenne in the medical field, and help accelerate research and development. Through our direct service programs, such as Camp Promise – which is open to young people with any neuromuscular disorder – we provide children and young adults with a fun-filled week of traditional camp activities where kids get to “just be kids” while parents and caregivers are given a much-needed week of respite. Learn more about our programs at www.jettfoundation.org.
- Website
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http://jettfoundation.org
External link for Jett Foundation
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- Plymouth, MA
- Type
- Nonprofit
- Founded
- 2001
- Specialties
- Education, Programs, Advocacy, and Research
Locations
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Primary
Get directions
36 Cordage Park Circle
Plymouth, MA 02360, US
Employees at Jett Foundation
Updates
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The rain and wind didn’t stop Team Jett from having a successful day at this year’s Cohasset Triathlon! We are grateful to participants and supporters for joining us to raise important funds and awareness for Duchenne muscular dystrophy. 💙💪 Read about our day at https://lnkd.in/e-wT8R-w.
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We invite all caregivers and family members of females living with Duchenne to join us next Friday, 7/19, to chat with others and share your journey. 💛 Caregiver Connextion sessions are free and open to all topics. Register today at https://lnkd.in/e8sW3Tgv.
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Up next on our Community Webinar Series is Cardiac Imaging, Treatment, and Therapy in Duchenne, Becker, and Carriers. We are excited to hear from Dr. Jonathan Soslow, a Professor of Pediatrics in the Division of Pediatric Cardiology at Vanderbilt University Medical Center. Register today at https://bit.ly/45xefCN.
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Today at 1pm ET: Jett’s Community Webinar Series featuring a presentation from Dr. Scott Baver from ITF Therapeutics LLC on an introduction to DUVYZAT (givinostat) for Duchenne. Register to receive the Zoom link at https://lnkd.in/eRxYzfvE.
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We are excited to announce the appointment of Jessica Campbell as Jett Foundation’s Social Worker. In this full-time role, Jessica will connect with individuals and families in the Duchenne community, providing them with resources, support, and more throughout their journey. ❤️ Help us welcome Jessica by reading more about her journey and role at https://lnkd.in/evyJA5bi.
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Tune in on July 18 at 1pm ET to hear from Dr. Jonathan Soslow on cardiac imaging, treatment, and therapy for individuals living with Duchenne, Becker, or are carriers. Dr Soslow has advanced training in cardiac imaging, including transthoracic echocardiography, transesophageal echocardiography, and cardiac magnetic resonance imaging. Register: https://lnkd.in/e6MxQFEq.
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Dreams coming true 🚘❤️ The Valdez-Ramirez family of New Jersey received their new safe and accessible van on June 23! They are most excited to have a reliable mode of transportation for medical appointments and family outings. Congratulations, Josvin and family! Read more about their celebration at https://lnkd.in/eWEhpUBB.
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Will we see you in Portland this September for our Family Workshop? 🦞💙 Don’t miss an opportunity to connect with Jett staff, members of the Duchenne community, and Duchenne professionals! Register to secure your spot at https://lnkd.in/e42JbcKi.
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Thursday, July 11 at 1pm ET: Jett’s Community Webinar Series featuring a presentation from Dr. Scott Baver of ITF Therapeutics LLC on an introduction to DUVYZAT (givinostat) for Duchenne muscular dystrophy. Register to receive the Zoom link at https://lnkd.in/eRxYzfvE.
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