Karrie Ruch

Easton, Pennsylvania, United States Contact Info
21K followers 500+ connections

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About

I am a Recruiter, Talent Delivery at The Jacobson Group, the leading provider of talent…

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Experience & Education

  • AgreeYa Solutions

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Volunteer Experience

  • Ladies Auxillary

    Tatamy Fire

    - 8 years 1 month

    Environment

    volunteer services

  • Raising Awareness

    Epidermolysis Bullosa (EB)

    - Present 15 years 1 month

    Health

    Epidermolysis Bullosa (EB)

    Some Foundations
    debra.org
    EBkids.org
    EBresearch.org
    guidestar.org
    Epidermolysis Bullosa (EB) — "The Worst Disease You've Never Heard Of." Epidermolysis Bullosa (ep-i-der-mo-lie-sis bu-low-suh), or EB, is a rare genetic connective tissue disorder that affects 1 out of every 20,000 births in the United States (approximately 200 children a year are born with EB). There is no treatment or cure. There are many genetic and symptomatic variations of…

    Epidermolysis Bullosa (EB)

    Some Foundations
    debra.org
    EBkids.org
    EBresearch.org
    guidestar.org
    Epidermolysis Bullosa (EB) — "The Worst Disease You've Never Heard Of." Epidermolysis Bullosa (ep-i-der-mo-lie-sis bu-low-suh), or EB, is a rare genetic connective tissue disorder that affects 1 out of every 20,000 births in the United States (approximately 200 children a year are born with EB). There is no treatment or cure. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30. EB affects both genders and every racial and ethnic background equally. Daily wound care, pain management, and protective bandaging are the only options available for people with EB -

    Those born with Epidermolysis Bullosa are often called “Butterfly Children” because as the analogy goes, their skin is as fragile as the wings of a butterfly. While many who live with milder forms of EB can lead long and productive lives, the list of manifestations and secondary complications in the more severe forms is lengthy and requires multiple interventions from a range of medical specialists. Those forms of EB result in disfigurement, disability, and in some cases early death. dystrophy, and pyloric atresia.

Languages

  • Hungarian

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