Cardiomyopathy is a disease of the heart muscle that is often underdiagnosed, misdiagnosed or diagnosed too late. Michael, from Melbourne, Australia, was misdiagnosed for over 20 years. Watch now to hear his story. Signs and symptoms of cardiomyopathy can vary widely. In its earliest stages cardiomyopathy may not have symptoms or symptoms may be mild. Visit https://lnkd.in/eNk-JRn8 for more information. #ThinkCardiomyopathy #CardiomyopathyAwareness #Cardiomyopathy2024 #ThinkCM
Global Heart Hub
Non-profit Organizations
Galway, County Galway 4,261 followers
The Alliance of Heart Patient Organisations
About us
The Global Heart Hub is the first global non-profit organisation established to provide a voice for those affected by cardiovascular disease. We are an alliance of heart patient organisations, aiming to create a unified global voice for those living with or affected by heart disease.
- Website
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http://www.globalhearthub.org
External link for Global Heart Hub
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- Galway, County Galway
- Type
- Nonprofit
- Founded
- 2019
Locations
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Primary
Moyola Lane
Galway, County Galway H91 FF68, IE
Employees at Global Heart Hub
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Penilla Gunther
Former Member of Swedish Parliament, Founder of FOKUS Patient
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David Kelly
Operations Manager @ Global Heart Hub / Chair @ Heart & Stroke Voice Ireland / CVD Patient Advocate
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Patricia Tiramani
Consultant | Passionate Health Advocate
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Paula Vital
Senior Lecturer/Adjunt-Professor | Coach | Speech and Language Therapist | Clinical Supervisor | Trainer | Researcher | Patient Advocate | Laughter…
Updates
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Global Heart Hub reposted this
As the first European Parliament Plenary of the new mandate gets underway, we are delighted to see so many returning MEPs who supported our EACH Summit in Strasbourg last year! In case you missed it, see a snapshot below of some of the 100+ MEPs who joined the call for better #CardiovascularHealth in Europe. A big welcome to all the newly elected officials and welcome back to others such as MEPs Dolors Montserrat, Tomislav Sokol, Elzbieta Łukacijewska, Barry Andrews MEP, Brando Benefei, ALESSANDRA MORETTI, Nicolás González Casares, Magdalena Adamowicz, Mohammed Chahim, Lukas MANDL, Maria Walsh, Tilly Metz, Ondrej Knotek, Billy Kelleher MEP, Susana Solís Pérez and many more! This is the moment for action on CVD, we look forward to working with you! #CVHealth4All 💗 Read more: https://lnkd.in/eFZdqU5m Our EACH Partners: European Society of Cardiology EFPIA - European Federation of Pharmaceutical Industries and Associations COCIR European Atherosclerosis Society European Chronic Disease Alliance ECHDO European Heart Network (EHN) EKHA - European Kidney Health Alliance ERC European Resuscitation Council European Stroke Organisation European Society for Vascular Surgery EUCOPE - European Confederation of Pharmaceutical Entrepreneurs European Institute of Women's Health, CLG ESH European Society of Hypertension European Thrombosis and Haemostasis Alliance FH Europe Foundation MedTech Europe Global Heart Hub Stroke Alliance For Europe (SAFE) World Heart Federation
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Global Heart Hub reposted this
Are your leaders doing enough to stop the world's biggest killer? How does your country rate for the following? ❤️ Health promotion and prevention ❤️ Diagnosis, treatment and care ❤️ Patient and community engagement ❤️ Education & information This #WorldHeartDay, let's demand action to save lives! Sign the first global petition to prioritize ❤️ health: https://lnkd.in/ds2XpqCv #HeartYes #UseHeart #UseYourVote #CVHealthForAll #HeartHealth
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Knowing if you have an inherited type of cardiomyopathy is important because it can impact the risk for other family members. Visit https://lnkd.in/eNk-JRn8 for more information. #ThinkCardiomyopathy #CardiomyopathyAwareness #Cardiomyopathy2024 #ThinkCM
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Check out Global Heart Hub's resource library for lots of great resources on #HeartFailure, #HeartValve Disease, #Cardiomyopathy and much more: https://lnkd.in/eCCTtmi
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Global Heart Hub reposted this
We need a cardiovascular health plan to prevent and manage the world's biggest killer. Sign our petition and help us send a powerful message to leaders: worldheartday.org/petition #HeartYes #UseHeart #WorldHeartDay #UseYourVote
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Global Heart Hub's David Kelly was delighted to take part in a webinar last month, "Cracking the Cholesterol Crisis", hosted by the British Association of Nursing in Cardiovascular Care (BANCC). The goal of this BANCC webinar was to provide an update on #cholesterol-related risk assessment and management across primary and secondary care for the benefit of members from the Primary Care Cardiovascular Society and the British Association for Cardiovascular Prevention & Rehabilitation. David shared insight from our Global Cholesterol Action Plan, developed as part of our #InvisibleNation project, aiming to reduce the impact of atherosclerotic cardiovascular disease (#ASCVD), the leading cause of mortality worldwide. Thank you BANCC for the opportunity. Learn more about our Global Cholesterol Action Plan - https://lnkd.in/eK2sbeR4
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Global Heart Hub reposted this
Our EACH Partners are well-represented at the High-Level Conference on #CardiovascularHealth in Budapest today including FH Europe Foundation, MedTech Europe, World Heart Federation, EFPIA - European Federation of Pharmaceutical Industries and Associations, European Society of Cardiology, Stroke Alliance For Europe (SAFE), European Heart Network (EHN), Global Heart Hub and more! ❤️ In the panel on Secondary Prevention, representatives from our EACH Partners MedTech Europe and the World Heart Federation discuss exploring different approaches to early detection of #CVD and to prevent the recurrence of #CV events in individuals with existing heart disease. During the panel on Treatment and Innovation, EFPIA share their thoughts on the current bottlenecks in #CVD research and how to overcome them. Throughout the last panel of the day on Rehabilitation and Patient Centered Support, EACH Partners SAFE and EHN consider the importance of rehabilitation for patients following cardiac events, and the role of support networks in patient recovery and quality of life. Thanks to the Hungarian Presidency of the Council of the #EU and ESC for putting cardiovascular health high on the political agenda! Visit our website to read about our vision for An EU Cardiovacular Health Plan: https://lnkd.in/exkeqf2s
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Global Heart Hub reposted this
Today and tomorrow, the Hungarian Presidency of the Council of the EU organizes the High-Level Conference on #Cardiovascular Health in Budapest, supported by EACH Partner European Society of Cardiology. Several leading experts from within the field, as well as key policymakers and patient representatives will be brought together to discuss European action on fighting #CVD, the biggest killer of men and women in the #EU. A Ministerial panel will also take place including several high-ranking officials of EU Member States (such as Poland, Spain, Hungary, Malta, Ireland, and Romania) and the WHO Regional Office for Europe. Learn more about the Conference here 👉 https://lnkd.in/e8icbg8m
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Thank you to everyone who joined us for our Empower Webinar last week: Understanding the Link Between #Obesity and Cardiovascular Disease with the Irish Coalition for People Living with Obesity (ICPO) and the European Coalition for People Living with Obesity (ECPO). If you missed the webinar, you can watch it back now here - https://lnkd.in/ebdUJKTH
Global Heart Hub Empower Webinar: Understanding the Link Between Obesity and Cardiovascular Disease
https://www.youtube.com/