CardioGenomic Testing Alliance

Looking for easy access to gene-based management for heritable aortic disorders? Be sure to check out the recording of this recent webinar, co-hosted by CGTA partner The John Ritter Foundation for Aortic Health, to learn more about the "Genomic Medicine Guidance app"! Developed by UTHealth, this decision support tool helps clinicians deliver concise clinical information about gene mutations that cause heritable cardiovascular diseases. An amazing resource for providers.

We are pleased to welcome the Children's Cardiomyopathy Foundation as the newest partner of the CardioGenomic Testing Alliance!   The Children's Cardiomyopathy Foundation (CCF) is a non-profit organization focused on pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease. CCF's mission is to accelerate the search for causes and cures for pediatric cardiomyopathy through increased research, education, awareness, advocacy, and support to affected children and their families.   "The Children’s Cardiomyopathy Foundation (CCF) is proud to support the efforts of the CardioGenomic Testing Alliance in promoting awareness of genetic testing for cardiovascular diseases like cardiomyopathy. Through educational initiatives, we hope that patients and healthcare providers have a greater understanding of its value in diagnosis and treatment,” said Lisa Yue, CCF Founder and President.    CGTA is grateful for CCF’s partnership and ready to work together to raise awareness of cardiogenomic testing and the role it can play for patients with cardiomyopathies. 

Looking for a genetic counselor that specializes in cardiovascular genetics? Be sure to check out our new Find a GC Map, an interactive tool to locate genetic counselors (GCs) specializing in cardiogenomic testing nationwide and beyond. If you need virtual services, you can utilize the "telehealth" filter to search for GCs that offer telehealth visits. Access to genetic counselors is key to increasing knowledge and utilization of cardiovascular genomics. Check it out here: https://lnkd.in/e8znMvrj

Kicked off the #HRS2024 weekend hosting a luncheon with The SADS Foundation for the amazing cardiovascular genetic counselors attending this weekend! Be sure to check out our “Find a Cardio GC” map to search for genetic counselors across the country.

We are all set and ready for #HRS2024! Stop by booth 1458 to learn more about the value of genomic testing in cardiology. We are always looking for more members, advisors, and partners to help increase awareness.

We are looking forward to this Clint and Illumina webinar tomorrow that will focus on strategies to encourage adoption of cardiogenomic testing. Don't forget to register!

CGTA member, Illumina, is co-hosting a roundtable discussion next week focused on the transformative role of genetic testing in cardiology. "Cardiovascular Medicine in the Genomics Era: Strategies for Cardiologists to Expand Adoption of Genetic Testing" will explore the current landscape of genomic testing in cardiology, identify barriers to the adoption of genetic testing in clinical practice, and discuss strategies for educating cardiologists about the benefits of genetic testing. The entire cardiovascular medicine ecosystem must work together to address the barriers to testing and raise awareness. With projects underway looking at the barriers to testing, CGTA is fortunate to work with panelists Mauro Longoni and CGTA Scientific Advisor Joshua Knowles to address these topics. Date & Time: Thursday, May 9 at 4:30 PM Eastern Time Register today and share with your networks! https://lnkd.in/gh77pEfc        

The CGTA team will be present at Heart Rhythm 2024 in Boston this May. Join us at booth #1458 to learn more about CGTA’s projects, educational materials, and membership opportunities while also getting the chance to talk to the community about raising awareness of genomic testing in cardiology. Please comment below or reach out to us if you are planning to attend. We look forward to connecting with many of you! #HRS2024 

Exciting News!   CGTA is happy to announce the launch of the Find a Cardiovascular Genetic Counselor Map. Featuring cardiovascular genetic counselors from across the US, Canada, and Australia, this interactive map allows providers and patients to find cardiovascular genetic counselors in specific areas.   Key Features: 📍 Location-Based Search: Locate genetic counselors in your area or a specific region 💻 Telehealth Services: Find genetic counselors offering telehealth services ❤️ Specialties: Search for genetic counselors that specialize in specific cardiovascular conditions   This map facilitates access to cardiovascular genetic counseling and fosters collaboration amongst providers. Increasing access to genetic testing services leads to improved health outcomes for patients. CGTA is grateful for the opportunity to provide this resource and is always open to exploring other tools to increase awareness and utilization of cardiogenomic testing. If you are a cardiovascular genetic counselor interested in providing your information, please click the form link on the map website!   Click here to see and utilize the map: https://bit.ly/3U0wtHp

We would like to introduce the next genetic counselor serving as a scientific advisor for CGTA … Olivia Roy, MS, CGC! As a genetic counselor at the Texas Center for Pediatric and Congenital Heart Disease spearheading the development of the cardiogenetic outpatient clinic at Dell Children’s Medical Center in Austin, Texas, Olivia is dedicated to advancing patient care through genomics. "I think the number one barrier I have seen is provider knowledge about the types of testing available,” she said. “I have seen many providers order the same tests over and over again because it is familiar to them, even if a different test might be a better option for the patient. “Creating educational tools for providers to use would be helpful to let them know of the vast amount of testing options that are available to them and their patients. Also, supporting and promoting the use of cardiogenetic providers earlier in the process of care would likely make the testing more efficient and helpful.” We are grateful to have Olivia help us develop these materials and tools.