The SADS Foundation

Are you passionate about making a difference? The SADS Foundation is seeking a visionary CEO to lead our mission of saving lives and supporting families affected by genetic heart conditions that may cause sudden cardiac arrest. As CEO, you'll drive strategic initiatives, advocate for our cause, and spearhead growth opportunities. Join us in transforming lives and advancing research in cardiac health. If you have proven leadership, a heart for community impact, and a drive for innovation, we want to hear from you! Apply now by emailing marcia@sads.org a cover letter and resume, and help us drive our mission forward

What's on the horizon for the treatment of Long QT Syndrome? Where are we in developing gene therapies that could potentially provide a cure? Hear Dr. Andrew Landstrom, Duke University, discuss this question! To learn more about the latest for LQTS, make sure to sign up for our research newsletter at https://ow.ly/WOmr50Su4GM - so the newest updates on research and treatment end up right in your inbox.

Mayo Clinic’s genetic counselor, Laura Rust, will talk about family planning for those with genetic arrhythmias on Thursday, July 18 at 7:30 PM ET. You may have seen Laura with Dr. Michael Ackerman on our SADS Live program in April. Now’s your chance to ask questions about family planning with a professional who regularly works with families in the clinic! Register at https://lnkd.in/gPWc6xPJ.

Since 1995 we’ve let you off the hook. There’s been no need to purchase a new gown or suit and no need to mark off an evening on your calendar. Our No Ball At All Campaign is just that; an opportunity to make a donation from your heart to change the lives of SADS families, like ours. Live Like Frankie was created out of a desire to continue helping others in memory of our Frankie and for the common good. Help us spread Frankie’s giving heart. Available now, you can donate in Frankie's memory at https://lnkd.in/gsSjBYmT. - Jen B. (Community Engagement Coordinator & Frankie's Mom)

Have you ever wondered if it is safe to ride a roller coaster with a SADS Condition? Our SADS Safe Summer Q&A live went over this question so go watch it to find out the answer! There were many more questions regarding staying safe with a SADS condition during the summer, including questions about summer camps. You can rewatch this SADS Live on our Facebook page or with the link below. https://lnkd.in/gz4X8s5n 🏷️ #LQTS #CPVT #Brugada #ARVC #ARVD #SuddenCardiacArrest #HeartFailure #ICD #SADSConditions #SADSSafeSummer #SafetywithaSADScondition

10 minutes until our next SADS Live with our special guest, Susan Etheridge. Susan is a Pediatric Electrophysiologist at Boise St. Lukes Medical Center & Stanford Lucile Packard AS WELL as the Vice President of the Board of Trustees for the Sudden Arrhythmia Death Foundation. We are so excited to have her this week to help answer YOUR questions about staying safe this summer with your SADS Condition. Happening TODAY at 2:20 Eastern Time. Watch here or on our Facebook page- https://lnkd.in/gz4X8s5n #SADS #SADSLive #CPR #AED #QASession #SADSConditions #CPVT #ARVC #LONGQT

Are you passionate about making a difference? The SADS Foundation is seeking a visionary CEO to lead our mission of saving lives and supporting families affected by genetic heart conditions that may cause sudden cardiac arrest. As CEO, you'll drive strategic initiatives, advocate for our cause, and spearhead growth opportunities. Join us in transforming lives and advancing research in cardiac health. If you have proven leadership, a heart for community impact, and a drive for innovation, we want to hear from you! Apply now by emailing marcia@sads.org a cover letter and resume, and help us drive our mission forward

Here at The SADS Foundation we understand that the journey of being diagnosed and dealing with a SADS condition can be challenging. Don't forget that we are here for you. 🏷️ #LQTS #CPVT #Brugada #ARVC #ARVD #SuddenCardiacArrest #HeartFailure #ICD

We have a special guest for this weeks SADS Live. Susan Etheridge, Pediatric Electrophysiologist at Boise St. Lukes Medical Center & Stanford Lucile Packard AS WELL as the Vice President of the Board of Trustees for the Sudden Arrhythmia Death Foundation(The SADS Foundation). We are so excited to have her this week to help answer YOUR questions about staying safe this summer with your SADS Condition. Set your reminders for this Friday at 2:20 Eastern Time. Watch on our Facebook page or with the link below, https://lnkd.in/gz4X8s5n 🏷️ #SADS #SADSLive #CPR #AED #QASession #SADSConditions #CPVT #ARVC #LONGQT

Frankie left his earthly body at ten years old on September 12, 2019, but we continue to feel his giving energy fuel us to help families like ours. Available now, you can donate in Frankie's memory and learn more about his story at https://lnkd.in/gsSjBYmT. It took 4 years after Frankie passed and our oldest child having a cardiac arrest to learn our family has #CPVT. With the help of SADS, we received a full education of our condition. We learned that SADS funds research, awareness, family support, and medical education. Today, SADS is helping us ensure Frankie’s memory and spirit of giving live on.