What's on the horizon for the treatment of Long QT Syndrome? Where are we in developing gene therapies that could potentially provide a cure? Hear Dr. Andrew Landstrom, Duke University, discuss this question! To learn more about the latest for LQTS, make sure to sign up for our research newsletter at https://ow.ly/WOmr50Su4GM - so the newest updates on research and treatment end up right in your inbox.
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Are you passionate about making a difference? The SADS Foundation is seeking a visionary CEO to lead our mission of saving lives and supporting families affected by genetic heart conditions that may cause sudden cardiac arrest. As CEO, you'll drive strategic initiatives, advocate for our cause, and spearhead growth opportunities. Join us in transforming lives and advancing research in cardiac health. If you have proven leadership, a heart for community impact, and a drive for innovation, we want to hear from you! Apply now by emailing marcia@sads.org a cover letter and resume, and help us drive our mission forward
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This weeks SADS Live is another Q & A Session with Dr. Ackerman. Get your questions ready and set a reminder for this Friday 11:20AM PT/2:20 PM ET. You can watch it on facebook or at https://lnkd.in/gQiaXYfJ 🏷️ #SADSLive #QandASession #SADS
#144 SADS Live Q&A
https://www.youtube.com/
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We are so excited to welcome Katherine Standefer to our Annual Conference this November! Check out the details of her session below.
Author of Kirkus Prize Finalist LIGHTNING FLOWERS | Speaker, Consultant, Mentor | Mining, Circular Economy, Medical Technology, Cardiology, Narrative Medicine, Sexuality, Reproductive Justice, Memoir | I talk to trees.
This November, I'll be presenting "Telling Your Heart Story: A Trauma-Informed Writing Workshop" for families attending The SADS Foundation's Annual Conference on November 8 at Lurie Children's Hospital in Chicago, Illinois. Join us at 4pm CT for 45 minutes of writing prompts and community-connecting conversation. And stick around afterward for a reception and #LightningFlowers book-signing hosted by Secret World Books. I'm so excited to connect *in-person* with the SADS community! https://lnkd.in/gWZRi4f3 Gayle Brandeis #Cardiology #LongQTSyndrome #LQTS #electrophysiology #SADS #SADSFoundation #ChicagoIL #arrhythmia #heartstory #heartwarrior #TellYourHeartStory #narrativemedicine Marcia E Baker Genevie Echols Alice Lara #writing #memoir #creativewriting
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“From the moment we found out Isabella was conceived we knew she was special.” Isabella Gonzalez brightened the lives of everyone she met. Her very favorite activity was dancing; she joined her first dance class at three years old. “We can go on for hours and hours about the joy Bella brought into our lives and anyone who came in contact with her,” says Amanda. “The outpouring of love and support of people she didn't even know just shows you the beautiful soul she is and will always be. Now she will always be our forever dancing angel.” Isabella was just 12 years old when she passed away in June 2022. Learn more about her bright light and legacy at https://lnkd.in/gq5jHdA2.
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Imagine an in-person meeting that brought together the foremost experts in SADS conditions (internationally!), all at the same time, in the same place. That's exactly what we're doing this November Friday November 8 - Saturday November 9 at Lurie Children's in Chicago, IL. Our International SADS Foundation Conference provides you with unparalleled access to experts, in person, all in one place. You have the chance to hear from and talk with them in person - without having to travel to see each one individually. You don't want to miss this chance! Here are just a few of the incredible sessions you'll experience as part of this conference. Register at https://lnkd.in/gdsP9tzG.
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What's on the horizon for the treatment of #ARVC? Where are we in developing gene therapies that could potentially provide a cure? Hear Dr. Cindy James, Johns Hopkins, discuss this question! To learn more about the latest for ARVC, make sure to sign up for our research newsletter at https://ow.ly/s8RF50SyfFn - so the newest updates on research and treatment end up right in your inbox.
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Less than an hour until our SADS Live with Jen Berko and Dr Ackerman! Click the link below or head to our Facebook page to watch it. https://lnkd.in/en9hv7qS 🏷️ #SADS #NoBallatAll2024 #LivelikeFrankie #CPVT #SCA #SuddenCardiacArrestAwareness
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Have you heard of Frankie? Frankie left his earthly body at ten years old on September 12, 2019, but we continue to feel his giving energy fuel us to help families like ours. It took 4 years and our oldest child having a cardiac arrest to learn our family has CPVT. With the help of SADS, we received a full education of our condition. We learned that SADS funds research, awareness, family support, and medical education. Today, SADS is helping us ensure Frankie’s memory and spirit of giving live on. Order your #LiveLikeFrankie hat today to show your support for Frankie’s family and the SADS community. https://lnkd.in/gsSjBYmT 🏷️ #SADS #NoBallatAll2024 #LivelikeFrankie #CPVT #SCA #SuddenCardiacArrestAwareness
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Join Andrew Landstrom, Duke University School of Medicine for our upcoming webinar on #GeneTherapy for #Cardiomyopathies, cosponsored by SADS & Heart University. Register: https://lnkd.in/gRJxyBMf.
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For this years No Ball at All, we want to share Frankie's story with our guest Jen Berko. Jen is Frankie's mom and she also is apart of our SADS Staff. Join us for this weeks SADS Live to hear more about this campaign and how you can help. Following Jen's interview will be our regular Q&A session. 🏷️ #SADS #NoBallatAll2024 #LivelikeFrankie #CPVT #SCA #SuddenCardiacArrestAwareness
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